Treatment Decision

From: Kit Danley

Hi Dear Friends,

I have been so grateful for your ongoing commitment to reading this blog and praying for Katy. You are dear to us, and we are strengthened by your persevering with and for Katy during this difficult time.

The next two weeks are critical for prayer, which is why I am writing to you right now. Katy has two weeks to make a very important decision regarding her treatment.

Let’s remember what her oncologist and the tumor board have said so far:
· Her MRI looks nice and clean right now, no swelling
· Her blood work is good
· He wants the genetic markers … these tests have been done, but they seem to be lost in the transfer (PRAY THAT THEY ARE FOUND); they are going to be helpful in discerning treatment potential
· He didn’t know what exactly to recommend regarding the next step which is why he consulted the TUMOR BOARD
· The Tumor Board approved Katy’s enrollment in the Clinical Trial using Temador (a pill) and Motexafin Gadolimium (I.V. infusion), there were two slots left in this Phase I study and they are saving one of these for Katy. (The use of Temador alone for 1 year has been eliminated as an option)
the motexafin gadolinium is generally well tolerated (blistering around nail beds, it can discolor skin to green)
· Katy’s other option – is to do nothing. Her tumor will come back; this is the kind she has. When it does, she can choose treatment then. (Of course, God can completely heal Katy, which remains our prayer.)
· Her next appointment is July 7

Katy is in a prayerful situation. What should she do? Begin the trail with the chemo, not knowing completely how sick she could become and even if there are any positive outcomes. Remember, these rare tumors are just now being studied. Or, wait until there is tumor regrowth and begin treatments then.

Only God knows what to do in these matters. So we are committed to pray with Katy until she sees the doctor on July 7 to give him her answer. I am praying for direction, for peace, for wisdom, for clarity, for HEALING. Will you pray with Katy, her family and her loved ones for these next two weeks, that we might see God guiding Katy into this next major decision. Loving you, Kit

Praying Psalm 34:

Join me in spreading the news;
together let's get the word out.
GOD met me more than halfway,
he freed me from my anxious fears.
Never hide your feelings from him.
When I was desperate, I called out
Open your mouth and taste,
open your eyes and see—
how good GOD is.
Blessed are you who run to him.