Saturday night, from Katy
Friday morning before heading off to the famous "Lake Day" with busloads of my favorite kids, I took the last available spot on the Temodar/Motexafin study. I was able to see the room where I will do my infusion five days out of every month, and met a woman just finishing her first week of the trial. Despite hearing that blistering on the fingers and knuckles is common with the Motexafin, the woman that I met was blister free. The nurse explained that wearing sunscreen on the hands and keeping them out of the sun at all times is showing some success with preventing this side effect. Each day that I have treatment I will take Zofran (to help with nausea), and will go to the hospital for my IV of Motexafin (which is dark green and may temporarily turn my skin and the whites of my eyes green. Eat your heart out Hulk!). Then later that same day I will take my Temozolomide and more Zofran. I will do that five days in a row and then have the rest of the month to recover. The study lasts for three months. If I like the Motexafin I can continue, and my doctor is going to decide whether I need 6 or 12 months of chemo once he sees how I am responding. I feel a great sense of peace about this decision. I am trusting God for this next phase of my treatment and what he has in store for me.
Huge answers to prayer:
1. I am completely off of steroids and headache free!
2. My Dad is back in Phoenix for a visit and Lenny will be here next week
3. I have been given the ok to drive
Love,
Katy
Friday, July 8th, Kids Club Lake Day @ Canyon Lake
posted by Neighborhood Ministries | 7/10/2005 07:33:00 AM
15 Comments:
Miss Katy,
You are in our prayers as you venture into this next part of your journey. We love you.
Ashlee, Brian, and Eszter Cowell
Hi Katy
I am thankful today that you were able to make your decision and that you feel comfortable with it. You are so strong! I pray that the Lord will continue to provide you with the strength you needto fight this and get back with your routine and be able to work again. There are so many things to be thankful for right now.
Things are going well here. I just finished making all of my centerpieces for the big day.Each one will be a gift for all of the females that have been so influential in the lives of Joe and I.
Continue to keep your head up high and know that we are all standing beside you! We love you and continue to pray for you!
Love you!
Michelle, Angela, Don & Denise
We love you Patty, Rick, Amy & Lenny!
Dearest Katy:
I am forever amazed at the calm and matter-of-fact way that you approach each day. While I know that you take a great deal of comfort from your family and our prayers, it is you who strengthens us all.
We are all praying for your treatments to be as effective as possible, with the least amount of discomfort to you.
I wanted to tell you that the dietician where I work could be your twin sister! Although she may be ten pounds heavier than you, with a little shorter hair, the resemblance is incredible. What is the most incredible, is that her voice could fool even those who are with you each day as to being yours! So in an odd sort of way, I feel as if I see you each day, and hear your voice. I think that the Lord finds unique ways to connect us to others, and puts people in each of our daily paths for a very specific reason. My starting college at the age of forty something was sparked by a chance meeting with a substitute teacher who became a friend. So, in a way, my coworker is a reminder of you and the smile that everyone loves about you, and the optimism and courage that comes to you so naturally.
We pray for the Lord to walk behind you and your family to support you as you move forward to better health and happiness.
Love,
Don, Denise, Michelle and Angela
Katy: am continuing to pray for you as you start this next phase of the journey. Phillipians 1:6, Sherry Gray
Hi, Katy.
So good to hear from you! And I'm glad you were able to come to a treatment decision. The fact that you feel peace about this choice is sooo great, and makes me feel peace. I still have many friends praying for you, so we will keep it up during this next phase.
Love the pic of you, doing what you do best (caring for children AND looking absolutely fabulous while doing it!). As it's summer, I'm remembering all of our road trips, the fake nails in Florida, and the strange bug life in several different tropical places. You go, Katy!
The Lord our God is with you, He is mighty to save. He will take great delight in you, He will quiet you with His love, He will rejoice over you with singing. (Zeph. 3:17)
Much Love,
Kirsten
Dear Katy,
Have to add something to my kid's! Just saw the new message (I hadn't checked the blog since Saturday during the day). Thanks for letting us know the details. The photo is lovely (great hat!). It was so good to hear from your mom on Saturday. (Oh, and tell your dad that Eric has not even heard as yet of the movie. We'll have to watch for it.)
I am continuing to hold you up in prayer...our God is Faithful.
Love, Mother Miriam :)
Katy, you and God are such an incredible team!
And that really is a great photo; if we knew each other, I would razz you about looking so good, with all you have been and are going through. But since we've never met, I'll leave it at that. ;-) You can check with Miriam about what passes for my sense of humor.
Back to the team effort: I realize you have a large prayer network going for you, far beyond your family and close friends, and that probably has something to do with your ability (seemingly) to sail through this season of your life as you are. There's no way around it: God is using you and your trust in Him in ways and with people you may never know of. Keep fighting the good fight; you're on the winning team!*
Love
Vicki Small
*Jer. 29:11 + Rom. 8:28
Katy,
So glad you to hear that you have a peace with your decision. Hey, green is a nice color...and you wear it well! Everytime I read and update from you, you amaze me. You are still in our prayers and we love you and can't wait for the next time to visit. Have a wonderful day and find something to giggle at!
Still praying....
Columbus, Indiana
la bonita senorita
we mice are not especially good typers and i can't hit the caps and the letter at the same time so excuse my punk..my puckt...my spelling.
i am asking pastor fuzz face to hlp me write the next chapter of our book but he is such a dork i don't know when i can get him to get at it. i have hopes i can chew on his ear [literally if i have to] to take down the next dictation of mt wonderful novel about you and me.
braidy, who thinks she is my girlfriend is getting jealous and while i think of us as just friends - i want to be sure you understand that too, for i would hate to lead you on.
i am sure you are quite beautiful for a human and i like you a whole lot -but i have to be honest that you are a little too tall for me and really just aren't my type. but we can still be friends, right?
anyway, as my dear friend and someone i admire a great deal [even if you don't have whiskers or a tail] i want to say how pleased i am with your courage,faith and willingness to share your journey. that is why you are the heroine of my book. i promise, i will really gnaw on pstor fuzzy to write down my next chapter and get it off to you soon.
In the Lord
RATUS
Dear Katy:
I was so happy to read your message about your decision to start the therapy program.
I am thankful that there is a peace about the decision and I will continue to pray that our Lords hand is continually on you and the doctors during the next months.
I know you all are having the real Phoenix weather these last few days. I hope everyone is doing well and staying as cool as possible.
Good news that you are headache free and can drive. What freedom that brings. I remember how thrilled Alex was when she could drive again.
Hi to your family
Stay well
God Bless You
Kathy Ost
Katy:
In our VBS this morning at Tab, we were talking about Creation and one of the kids asked why God created sickness. The kids theorized and discussed for a while, and one of the answers they all agreed on was that God had a good reason for creating sickness, and that in some way it serves His purposes. Then one child said "I think God made sickness to help people to draw closer to him". Out of the mouths of babes!! My greatest prayer for you, even more than my prayers for peace and healing, is that through this experience, our gracious, loving Heavenly Father will draw you closer to him in heart, mind and soul. Blessings on you!
Jennifer Wirt
I am sure you made the right decision, and that your doctors are monitoring this closely..Seems to be a close "walk" with God, you, your family, your co workers, and Team Katy..( me and lots of "others"...)
Love you very much..Beth :-)))
Katy,I recently got back from a London vacation with a tour group from Whittier. We were packing to return home on the morning of the bombings. God is good! Glad to hear you made a decision and are at peace with it. I still hold you so dear to my heart. It will be so wonderful and freeing for you to be able to drive again. As others have said, green is good. Have fun with the kids this summer! Love Pat
Dear Katy,
I do not know you, but know you are part of the family of God - we are in the same family. Scott asked for prayer for you several months ago and I wanted to let you know my wife and I are praying for you and appreciate the updates on your treatment. God Bless you and thank you for your optimism and faithfulness.
Phil and Mavis
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