Katy Reel

Dear Friends: This website (a blog for Katy) has been set up so that you can receive updates regarding Katy’s situation. You can go to the blog for updates and then you can leave your encouragements, your prayers and affirmations for Katy, her family and friends to see. Thanks for praying. God bless you for loving Katy this way. - Kit Danley

My Photo
Name:
Location: Phoenix, Arizona, United States

Friday, December 30, 2005

ER Visit Report

Thanks to all of you who checked in today. Your faithfulness to Katy’s needs is a great ministry to her and all of us.

It has been a long day, Katy just arriving home right now (5:00 pm Phoenix time).

They did an ultra-sound to check for blood clots and it was negative. They also checked her blood and it was fine. She has received stronger pain medication.

Tonight, she will take her second dose of Temedor and she will have three more doses the following three nights.

It could be that this terrible pain is caused by the chemo, possibly it is leg cramps. Though that is unlikely.

Pray that the Temedor can be tolerated with out this pain.

You are dear to all of us. Thank you for your love.

ER trip today

Dear Praying Friends,

We are so grateful to be able to give you the minute by minute update through this blog, because we know that so many of you check it throughout the day.

Katy began the temedor last night. She began to have a very intense leg pain sometime last night, so bad that she needed to have some pain medication. Her chemotherapy is so important to stay with, therefore this leg pain needs to be diagnosed, to be eliminated.

This morning Katy is on her way to the ER for evaluation of the source of this leg pain. Will you please pray for the diagnosis and for treatment and for the pain.

We are so grateful for your intercession. Our hearts are bound together in seeking God for Katy.

Tuesday, December 27, 2005

In the Shelter of the Most High

Those who live in the shelter of the Most High
will find rest in the shadow of the Almighty.

This I declare of the LORD:
He alone is my refuge, my place of safety;
he is my God,

and I am trusting him.

For he will rescue you from every trap
and protect you from the fatal plague.

He will shield you with his wings.
He will shelter you with his feathers.

His faithful promises
(I wonder which of these you have been gifted by God for Katy)
are your armor and protection.

Psalm 91:1-4



Well, dear friends,

Katy began chemo today, this treatment is placed in her implant. It didn’t hurt and the procedure is simple. She will have it again in two weeks, and will remain on a two week cycle. The other chemo treatment, the temedor, will also start, tomorrow, and she will have this everyday for five days, and repeat the treatment again next month.

PRAY
* For her physical and mental response to the chemo, as you know Katy is very sensitive to medications, for little to no reaction


She will have scans now every eight weeks, to see how things are going. The first couple of scans won’t show much, the doctors are saying, after that they will pick up any new tumor growth.

PRAY
* For no more tumor growth, for complete healing


The pathology is in, and there is no change, it is the same type of tumor, but has proven to be very aggressive.

PRAY with us that this tumor would respond to Jesus and to His demands.

Katy’s strength is improving little by little. She walked a little more today. Her nausea is better, she is eating more than she was, and has a bit of an appetite. Yet, she is tired and a little frustrated that she is tired all the time, not completely herself, lying too much on the couch.

PRAY
* that her strength would increase, that she would have a great appetite and regain some weight, and that physically she would be ready for the chemo onslaught.


Your love and encouraging words mean so much to each reader of the blog. Thank you for your commitment to persevere in prayer. Keep trusting Katy into the arms of her protector, in whom she has found shelter.

Tuesday, December 20, 2005

Katy at home

Ecclesiastes 4:9-12

Two are better than one, because they have a good reward for their toil. For if they fall, one will lift up the other; but woe to one who is alone and falls and does not have another to help. Again, if two lie together, they keep warm; but how can one keep warm alone? And though one might prevail against another, two will withstand one. A threefold cord is not quickly broken.

_________________________

Katy came home today, about 1:00, along with all her helpers, Patty, Rick, Lenny, Amy and Heather. How strange that all these terribly difficult procedures and some recuperation have all been in just one week. The challenge in this past week, is in understanding it, feeling it, living with it. These loved ones are very tired.

Katy is sleeping a little better right now than when she first came home. She is somewhat disoriented and there is still some spatial orientation confusion, which goes with her equilibrium trouble. She was very nauseated this morning, which was a little better yesterday.

Yet, she is very glad to be home in her own bed, even though her bed feels weird for some reason. She is still exhausted and it isn’t time for visitors yet. When she is feeling better, the visits will be the best thing for her. But right now she needs to make the transition. She is so happy to be back in her own home.

On Tuesday she’ll go to the neuro-oncologists office to have chemo through her reservoir at his office, which will then happen every two weeks. The temedor will be once a month also.

She’ll see the rehab doctor in about two or three weeks, to measure improvements and to do some work on areas that need a little adjustment. The rehab doctor will probably have her see an ophthalmologist. Her eyes haven’t settled down yet.

PRAY
Pray against this nausea, and for strength, that her eyes would settle down.

It is our earnest prayer that Katy will get stronger, and that this chemo won’t knock her out. She has a great deal of medicine sensitivity. She needs to regain her strength to battle on the next front.

There is not a final pathology report … we will let you know when it is in.

_________________________

If the LORD had not been my help,
My soul would soon have dwelt in the abode of silence.

Psalm 94:17

Wednesday, December 14, 2005

Recuperating

Thank you dear friends for praying.

Yesterday the gamma knife radiation procedure went well. It was such a long day, so invasive and a long process. In addition, Katy was transported to the procedure in a wheel chair, when she has not been in a horizontal position for days. All that up and down, so suddenly was very difficult.

But, as you can imagine, whenever asked by a medical person if she would like this or that, she commonly responds, "whatever works for you". Since most patients don't respond like that, I'm sure they often ask themselves, "what would work for me"?

The CT scan still shows slight swelling of the ventricles, so they can't remove the drain yet, so that means that she is still in Intensive care -- a few more days there ... it looks like.

Today they implanted the ommaya reservior and that also went well. The doctors are still hopeful that no shunt will be needed.

Katy's eyes are improving though she keeps them shut most of the time. They seem to be not working together normally. We're not sure why. Her eyes and equilibrium seem to be connected to the naseau which is still a problem. It is expected that they should improve too.

Here are the prayer requests from the last two days:
* swelling in brain would resolve itself
* no more naseau
* get good rest and recovery
* her eyes and equilibrium would continue to improve

And we are thanking God for:
* kind and skilled nurses and doctors
* you our dear intercessors, faithfully taking all of these things to the throne of grace

Rehab will begin once Katy is in a regular room.

Some prayer requests for the family:
* health
* strength and endurance
* hope

May God strengthen you, to find his everpresent help in time of trouble. This trouble belongs to the Lord, let us earnestly seek His resource for all that Katy needs right now.

Monday, December 12, 2005

Katy's Treatment Plan

Dearest Friends,

Patty just called with the update from Dr. Smith (Katy’s current neuro-surgeon) and the tumor board. She, Katy, Amy and Lenny were all present to hear the report with the treatment plan. Thank you for praying for these very expert physicians.

Treatment plan

Tomorrow is Radiation:

Gamma knife radiation (see below) is already scheduled for tomorrow on both tumors and the other site of one they resected
1. there is one tumor on the left occipital lobe
2. another one on the right frontal lobe
3. and the bed where the tumor was removed

But first:
They will do a CT scan to check for pressure on the 4th ventricle, if there is none, they will remove the drain tube so they can do the gamma knife procedure.
She will then be moved out of ICU tomorrow after the procedure.

Wednesday begins Chemotherapy:
They will implant an omya reservoir – and into this they will administer the chemotherapy (depo-ara-c) There will be a tube going into the cerebral spinal fluid which takes the chemo everywhere into the central nervous system.
In addition, she is going to take temedor (her old chemotherapy) every month for five days like before, but without the green stuff. Dr. Shapiro notes that the tumors grew after the temedor was done, so he thinks that it is an effective treatment for Katy.

The Pathology
The pathology reports say that the new tumors progressed further to malignant oligo astrocytoma. This tumor type also has tendrils which is very problematic. As you remember, these tendrils cause new tumors to grow. During the surgery he got out everything he could see, but knows there are things he can’t see.

How is Katy doing?
Her vision is better, they are controlling the pain well, and she is sleeping, her incision site is healing already.
She is very sleepy ... in fact ... here she is, our very own "sleeping beauty"!

Prayer
Gather together, come away alone, seek God in some quiet space ... make time to talk to God about Katy's healing. He is available and He is powerful. He alone can manage this terrible problem of her brain tumors. Those of you who are more experienced in healing prayer, you might be called on to lead others in this. Meanwhile, the Holy Spirit is our counselor and our teacher. Let Him guide you and us as we seek Him earnestly together for Katy's healing. For He is our refuge and strength, a very present help in time of trouble.

And ... No visitors please! This is a very different hospital experience than the last one. We love you and thank God for all you are doing in intercession and many gifts and kindnesses.

---------------------------------------------------------
---------------------------------------------------------

GAMMA KNIFE SURGERY

This information is courtesy of The Center for Image-Guided Neurosurgery, University of Pittsburgh Medical Center, Presbyterian Hospital.
Website: www.neurosurgery.pitt.edu.
Click on “Centers of Excellence” for phone and email contact information.

Gamma Knife surgery is recognized worldwide as the preferred treatment for brain tumors,arteriovenous malformations and brain dysfunctions like trigeminal neuralgia. It is supported by over 2,500 peer reviewed research article primarily published in neurosurgery journals. The Gamma Knife offers a non-invasive alternative for many patients for whom traditional brain surgery is not an option and removes the physical trauma and the majority of risks associated with conventional surgery. This effective single session treatment may require an overnight hospital stay but is often done in an outpatient surgical setting with periodic follow-up. It is proven safe over the long term and is recognized and covered by insurance plans.

The Gamma Knife allows noninvasive cerebral surgery to be performed in one session the same as neurosurgery with extreme precision, sparing tissues adjacent to the target. Based on preoperative radiological examinations, such as CT-scans, MR-scans, or angiography, the unit provides for highly accurate irradiation of deep-seated targets, using a multitude of collimated beams of ionizing radiation in scalpel like precision.

Gamma Knife surgery represents a major advance in brain surgery, changing the landscape within the field of neurosurgery in the last decade. Its development has enhanced neurosurgeical treatments offered to patients with brain tumors and vascular malformations by providing a safe, accurate and reliable treatment option. Gamma Knife enables patients to undergo a non-invasive form of brain surgery without surgical risks, subsequent rehabilitation or a long hospital stay.

Gamma Knife surgery is unique in that no surgical incision is made to expose the inside of the brain, thereby reducing the risk of surgical complications and eliminating the side effects and dangers of general anethesia. The “Blades” of the Gamma Knife are the beams of gamma radiation programmed to target the lesion at the point where they intersect. In a single treatment session, 201 beams of gamma radiation focus precisely on the lesion. Over time, most lesions slowly decrease in size and dissolve. The exposure is brief and only the tissue being treated receives a significant radiation dose, while the surrounding tissue remains unharmed.

With the Gamma Knife, a surgical incision is not required; the attendant risks of open neurosurgical procedures (hemorrhage, infection, CSF leakage, etc.) are therefore avoided.

Published reports indicate that the Gamma Knife may be used as an alternative to standard neurosurgical operations or as an adjunctive therapy in the treatment of residual or recurrent lesions left unresected by conventional surgery. Radiosurgery can be especially useful for those patients who are not suitable for standard surgical techniques due to illness or advanced age. In many neurosurgical cases, the Gamma Knife is the only feasible treatment.

Conditions for which application of the Gamma Knife is considered most effective are:
1. Intracranial tumors such as:
acoustic neuromas, pituitary adenomas, pinealomas, craniopharynigiomas, meningiomas, chordomas, chondrosarcomas, metastases and glial tumors.
2. Vascular malformations including arteriovenous malformations.

In addition to the above mentioned indications, clinical experiences exists in the treatment of functional disorders such as trigeminal neuralgia, intractable pain, Parkinson’s desease, essential tremors and epilepsy. More recently positive results have been seen in the treatment of psychoneuro dysfunctions such as obsessive complusive disorders.

The Gamma Knife technology can be used to treat those who do not require immediate surgical relief of disabling symptoms and whose tumors are in general 3.5 cm or less. When Gamma Knife can not be utilized or is not available to the patient, radiosurgery with linear accelerator technology can usually be utilized. For more information on linear accelerator treatment and technology: Linear Accelerator

ADVANTAGES OF GAMMA KNIFE

* Gamma Knife is a neuro-surgical tool designed exclusively for the treatment of brain disorders.
* The lesion being treated receives a high dose of radiation with minimum risk to nearby tissue and structures.
* The cost of Gamma Knife procedure is often 25 to 30 percent less than traditional neurosurgery.
* Patients experience little discomfort.
* The absence of an incision elimates the risk of hemorrhage and infection.
* Hospitalization is short, typically an overnight stay or an outpatient surgical procedure. Patients can immediately resume their previous activities.
* Gamma Knife technology allows treatment of inoperable lesions. The procedure offers hope to patients who were formerly considered untreatable or at very high-risk for open-skull surgery.

Friday, December 09, 2005

December 9, 2005

Lamentations 3:22-24
It is of the LORD's mercies that we are not consumed,
because his compassions fail not.
They are new every morning:
great is thy faithfulness.
The LORD is my portion, saith my soul; therefore will I hope in him.


Today's update ....

First, your praying is felt here, as hearts are finding strength somehow, in the midst of it all. Katy made it through the surgery, and the surgeon said he was very pleased with Katy's rapid recovery and how well it went.

There was some removal of the designated tumor.

Monday is an important day for prayer as the tumor board will meet to take a look at the existing tumors and decide the course of action. Please pray for supernatural intervention for these specialists.

The current tumors appear to be very aggressive, however, the most recent pathology is not in yet.

Thank you for being led by the Spirit of God in your praying as you intercede for Katy. Call out to our mighty God whose lovingkindnesses never cease and whose compassions never fail. And expect them to be new this morning, and agree with all of us here, how great is His faithfulness. (Oh Lord, we do expect this for Katy, her family and all of us, her loved ones.)

Thursday, December 08, 2005

Katy Update

Hello Dear Praying Friends,

I wanted to hurry to the blog, to give you the best update we have to date regarding Katy's current and unexpected medical situation. It allows us to pray together and to be of one mind, for and with her.

At this very minute, Katy is sitting in the waiting room of the emergency portion of St. Joseph's hospital where Barrow Neurological Center is located. Her treatment and care will be provided here at this renowned hospital. She will be moved as quickly as possible to an intensive care room.

Currently there are three areas of Katy's brain where the cancer has returned. One of the areas is causing a build up of pressure in the brain. This increased pressure is causing Katy's symptoms of dizziness, problems with balance, and nausea and vomiting.

She is going to be admitted today (December 8th) into the hospital and will have surgery tomorrow (December 9th) morning @ 9:30 to have a procedure to decrease the pressure and help her symptoms. The surgery will also be to remove parts of the cancer. She may also get chemotherapy to treat the other parts.

Although all brain surgery has risks, it is necessary surgery. Afterwards Katy may have some problems with her speech and her balance.

So, dear friends, I know this news is so difficult for you to bear, as you love our dear Katy so much. But it is of great comfort to her that you are praying and seeking God on her behalf. Know that she is surrounded by the love of God, this is evident.

Pray for Rick and Patty Reel as they are coming from Indianapolis in a blinding snowstorm. As of this writing, their flight crew wasn't even at the airport yet, stuck somewhere because of the storm.

Amy has also gotten a flight out. Pray for her safe arrival.

Lenny remains here, so faithful to take care of Katy through all of this. It is off of his notes that this email blog comes to you.

We stand with Katy, in Jesus. In confidence that His love not only binds us together but gives us access to the throne of grace that we might boldly come. For he says I will never leave you nor forsake you so that we might boldy say, "The Lord is my helper."
Please pray for Katy's healing.

Loving you, Kit

John 16:33
I've told you all this so that trusting me, you will be unshakable and assured, deeply at peace. In this godless world you will continue to experience difficulties. But take heart! I've conquered the world."

Katy Reel update

Dear friends,
I just got off the phone with Katy regarding her new MRI report. The news is not good. Katy has two new tumors in the back area of her brain. She is being admitted to St. Joseph’s this afternoon (no room # yet) and will have surgery tomorrow (no time yet). Please pray. She is scared and sad. I will keep you posted as I know anything. The one thing I know above all else is that God holds Katy in the palm of His hand…the safest and best place for her (and us) to be.
Susan Leon